Beats for Bella

Raising Awareness for Congenital Heart Defects

2022 Bella of the Ball

"Living with Half a Heart"

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About Us

Beats for Bella is a 501(c)3 non-profit organization that strives to create awareness for Congenital Heart Defects (CHDs) by telling the story of our daughter Bella Borkowski. We focus on raising funds so that we can contribute to CHD Research that will allow for life saving advancements in treatment and enriching the quality of life for children with Congenital Heart Defects.

Bella was born with a severe Congenital Heart Defect called Hypoplastic Left Heart Syndrome on March 18, 2013 in the Special Delivery Unit at The Children’s Hospital of Philadelphia. HLHS is a single ventricle heart defect in which the left side of the heart does not form. This type of heart defect is fatal if untreated and requires three open heart surgeries to repair the defect, typically by the age of 3. Bella had her third and final planned open-heart surgery to complete her repair on April 4, 2016. While her repair is complete her life with a Congenital Heart Defect will never end. She needs continued cardiac care.

At Beats for Bella we work very hard to spread awareness for Congenital Heart Defects. Annually 40,000 babies are born with a Congenital Heart Defect (that is 1 in 110 babies!) Of those 40,000, 960 are born with Hypoplastic Left Heart Syndrome like our daughter Bella. Considering its prevalence CHD research is significantly underfunded. We hold a variety of fundraisers throughout the year as well as constant social media awareness projects to help spread the word about what Bella and so many other children fighting a Congenital Heart Defect go through.

Bella told me today this was her goal. She wanted to pedal the whole time. Well when this child decides she’s doing something nothing stands in her way. She stayed on the bike the whole hour! I am in awe of her. My hero. You can still donate to her team…Bella’s Babes and Bros! Click here chop.donordrive.com/index.cfm?fuseaction=donorDrive.team&teamID=11298 ... See MoreSee Less

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Finished the day with extra sweaty boys! We had a great day from start to finish! @courtneybethhartmann ... See MoreSee Less

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We made a new friend today! Sofia has congenital heart disease and is only 6 months younger than bel. Jennifer so nice to meet you! 😘 ... See MoreSee Less

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Wearing our Ava socks to spin today! @webuildhearts ... See MoreSee Less

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She pedaled for a whole hour! This girl is amazing!! Still time to donate! Link in bio. @phillyspininfounders ... See MoreSee Less

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HLHS Consortium provides hope for babies born with HLHS ... See MoreSee Less

HLHS Consortium provides hope for babies born with HLHS

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Collaboration between hospitals across the country as part of a new research consortium, the HLHS Consortium, is giving hope for the future of babies born wi...

5 days ago  ·  

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© 2022 · Beats for Bella Inc.
501c3 Organization