Beats for Bella

Raising Awareness for Congenital Heart Defects

2020 Beards For Bella Fundraiser

"Living with Half a Heart"

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About Us

Beats for Bella is a 501(c)3 non-profit organization that strives to create awareness for Congenital Heart Defects (CHDs) by telling the story of our daughter Bella Borkowski. We focus on raising funds so that we can contribute to CHD Research that will allow for life saving advancements in treatment and enriching the quality of life for children with Congenital Heart Defects.

Bella was born with a severe Congenital Heart Defect called Hypoplastic Left Heart Syndrome on March 18, 2013 in the Special Delivery Unit at The Children’s Hospital of Philadelphia. HLHS is a single ventricle heart defect in which the left side of the heart does not form. This type of heart defect is fatal if untreated and requires three open heart surgeries to repair the defect, typically by the age of 3. Bella had her third and final planned open-heart surgery to complete her repair on April 4, 2016. While her repair is complete her life with a Congenital Heart Defect will never end. She needs continued cardiac care.

At Beats for Bella we work very hard to spread awareness for Congenital Heart Defects. Annually 40,000 babies are born with a Congenital Heart Defect (that is 1 in 110 babies!) Of those 40,000, 960 are born with Hypoplastic Left Heart Syndrome like our daughter Bella. Considering its prevalence CHD research is significantly underfunded. We hold a variety of fundraisers throughout the year as well as constant social media awareness projects to help spread the word about what Bella and so many other children fighting a Congenital Heart Defect go through.

Certainly weird times but the silver lining..... conversations about grandparents and family. We are blessed and lucky. ... See MoreSee Less

2 days ago  ·  

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#beardsforbella ... See MoreSee Less

5 days ago  ·  

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#herstory 957benfm.com/episodes/erinborkowski/ ... See MoreSee Less

5 days ago  ·  

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Highlighting this guy this week! Mario is growing his beard for Bella. He also was born with a congenital heart defect. He was born with Aortic Stenosis and had open heart surgery when he was born, another when he was 10 and just had his 3rd to replace his valve. This is Mario from his hospital bed today. We are grateful for you Mario and wish you an uneventful hospital stay and speedy recovery! #chdawareness #beardsforbella2020 @webuildhearts @mayoclinichlhs @crashedmymariokart @taymcwclovee ... See MoreSee Less

6 days ago  ·  

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Thank you Huertgen Chiropractic for helping us spread the word about Beards for Bella!! @erdenheimpa www.drnormhchiro.com/ ... See MoreSee Less

1 week ago  ·  

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@jennifritzphotography never disappoints love love love. Thank you for taking these beautiful pictures. ... See MoreSee Less

2 weeks ago  ·  

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© 2021 · Beats for Bella Inc.
501c3 Organization